SLIDESHOW: A Look at 5 Rare Skin Conditions

Rare Disease Day, observed annually on February 28 (or February 29 in leap years—the rarest day of all), is a globally coordinated movement dedicated to advocating for people living with rare diseases. Since its inception in 2008, it has fostered a diverse yet united international community working toward equity in health care, diagnosis, and treatment access. Led by EURORDIS and 65+ national patient organization partners, Rare Disease Day serves as a vital platform for raising awareness and driving policy change at local, national, and global levels. While patient-led, it invites participation from health care professionals, researchers, policymakers, and the public to shine a light on the challenges faced by the 300 million individuals worldwide affected by rare diseases. Through social media campaigns, events, and advocacy efforts, Rare Disease Day amplifies the voices of this vulnerable population, urging immediate attention and action to improve their lives.¹